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Listen to Those Feelings

November 29, 2018

I printed this card recently. In trying not to be so hard on myself (listening to the voice that says, “you’re not doing enough), I attempted to block the emotion.

The truth is that sometimes we need to listen to the voice, even if only for a minute or two.  Nancy Jane Smith writes about this here, saying “what if there is no happy ending?” And, of course, for me with mom, there isn’t. Her dementia will worsen. One day, she won’t know who I am. Even if she does, she won’t for long as her memory seems to last about an hour these days.

What if that thought is actually freeing? What if that means you can stop hustling, reframing, pretending, changing your thoughts and changing your vibrations all the time? What if you could just be whatever you are without always trying to find the happy ending?”

I have struggled the last ten years to unlock a lifetime of emotions. Yes, I wish I had started earlier. Don’t we all? But dealing with these feelings now is freeing, as Smith says. I hope printing and sharing my cards helps others deal with theirs, too.

Dementia has taught me much about the brain, memory, thinking, and feeling. Grief has its own gifts.


Filed Under: dementia, family

Storms Ahead?

November 20, 2018


As I headed into an appointment today, I glanced over my shoulder.
I was hoping this was not a metaphor for my life, or a sign of what was coming. My Mom has Alzheimer’s, or at least dementia that gives her very little memory. I never know from day to day if she will need me, or if I will have to make some life changing decision about her care. Yesterday, I did.

We are moving her again to a different facility. These changes are hard on people with memory issues, but as her caregiver, I often need to make these difficult decisions. So, storms are on the horizon. But, perhaps we will get a reprieve. Perhaps the clouds will pass, and she will settle in. That’s really all I want for her. A way for the end of her life to be calm. For her to know I love her.

I printed this yesterday, and the work gave me a chance to pause.


Filed Under: dementia, family

Thinking About…

November 17, 2018

So easy to forget to do this, do easy to do.


Filed Under: creativity, dementia, family

Making Peace

August 1, 2018

“you know what happens when we victimize ourselves? When we hand over our power to circumstances? We lose everything that matters. We lose the freedom to change, the grace to rise above, the strength to get up off the couch. We have given the power away. We can no longer conjure it when we need it most.”
― from “Chasing Slow: Courage to Journey Off the Beaten Path”


Filed Under: dementia, family, letterpress

When I Live in the Night

July 28, 2018

Life has turned again, which it does when living with a mother whose mind says one thing and body says another. So 3 a.m. comes again and again.

I can go months without reading poetry, but suddenly the words return. This one from Rosemerry Wahtola Trommer

 

 

 

 

Into the Dark Again

by Rosemerry Wahtola Trommer

Dark and getting darker—

nothing to do but to make of the body

a home for darkness,

to open every secret drawer

where we hide our private darknesses.

Who knows what might happen then?

How immeasurable we are. It is only

terrifying until it becomes freedom.

Grace comes in the strangest costumes.

Did you really think you didn’t need help?

This night, stay awake.

Some things we can see no other way.


Filed Under: artandwriting, dementiaTagged: dementia

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